Abstract
This study examined the effect of a home-based six-week motor skill intervention for children with CHARGE syndrome. Six families with children with CHARGE syndrome participated in this study. The children were assessed on their motor skills with the Test of Gross Motor Development 3 prior to the intervention and then again on the four most practiced motor skills after the intervention. Parents were also given a parental perceptions questionnaire before and post intervention. The families were provided a Gross Motor Development Curriculum, videos, tip sheets, and equipment to support the intervention. Families maintained weekly logs of their specific training practices. Each family was interviewed, and the transcripts were analyzed for themes. The four themes that emerged were Personal goals, Improvement, Barriers, and Overcoming challenges. Results revealed that it is feasible to utilize this protocol to improve motor skills for children with CHARGE syndrome.
| Original language | English |
|---|---|
| Pages (from-to) | 4-23 |
| Journal | Research, Advocacy, and Practice for Complex and Chronic Conditions |
| Volume | 40 |
| Issue number | 1 |
| DOIs | |
| Publication status | Published - 2021 |
| Externally published | Yes |
Keywords*
- assessment
- disability
- visual impairment
- deaf-blind
- deafness
- parent perceptions
- Motor development
Field of Science*
- 3.3 Health sciences
- 3.1 Basic medicine
Publication Type*
- 1.3. Anonymously reviewed scientific article published in a journal with an international editorial board and is available in another indexed database