Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort

Ivan Foeldvari; Jens Klotsche; Ozgur Kasapcopur; Amra Adrovic; Brian Feldman; Maria Teresa Terreri; Ana Paula Sakamoto; Kathryn S. Torok; Sindhu Johnson; Jordi Anton; Gülcan Özomay   Baykal; Flavio Sztajnbok; Valda Stanevicha; Maria Katsikas; Raju Khubchandani; Simone Appenzeller; Tadej Avcin; Mikhail Kostik; Edoardo Marrani; Walter‐Alberto Sifuentes‐Giraldo; Dieneke Schonenberg‐Meinema; D. Nemcova; S. Abu Al Saoud; E. Al-Abadi; Christina Battagliotti; Lillemor Berntson; Bianca Bica; Jürgen Brunner; Patricia Costa-Reis; Despina Eleftheriou; Gerd Horneff; Mahesh Janarthanan; Tilmann Kallinich; Thomas Lehman; Kirsten Minden; Monika Moll; Susan Nielsen; Clare   Pain; Anjali Patwardhan; Maria Jose Santos; Vanessa Smith; Yosef Uziel; Nicola Helmus

Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort

Ivan Foeldvari, Jens Klotsche, Ozgur Kasapcopur, Amra Adrovic, Brian Feldman, Maria Teresa Terreri, Ana Paula Sakamoto, Kathryn S. Torok, Sindhu Johnson, Jordi Anton, Gülcan Özomay Baykal, Flavio Sztajnbok, Valda Stanevicha, Maria Katsikas, Raju Khubchandani, Simone Appenzeller, Tadej Avcin, Mikhail Kostik, Edoardo Marrani, Walter‐Alberto Sifuentes‐GiraldoDieneke Schonenberg‐Meinema, D. Nemcova, S. Abu Al Saoud, E. Al-Abadi, Christina Battagliotti, Lillemor Berntson, Bianca Bica, Jürgen Brunner, Patricia Costa-Reis, Despina Eleftheriou, Gerd Horneff, Mahesh Janarthanan, Tilmann Kallinich, Thomas Lehman, Kirsten Minden, Monika Moll, Susan Nielsen, Clare Pain, Anjali Patwardhan, Maria Jose Santos, Vanessa Smith, Yosef Uziel, Nicola Helmus

Research output: Contribution to journal › Meeting Abstract › peer-review

Original language	English
Article number	P166
Pages (from-to)	125-126
Journal	Pediatric Rheumatology
Volume	23
Issue number	Suppl.2
Publication status	Published - 2025
Externally published	Yes
Event	32nd European Paediatric Rheumatology Congress - Helsinki, Finland Duration: 17 Sept 2025 → 20 Oct 2025

Field of Science*

3.2 Clinical medicine

Publication Type*

3.4. Other publications in conference proceedings (including local)

Access to Document

PatientFinal published version, 1.04 MB

Cite this

Foeldvari, I., Klotsche, J., Kasapcopur, O., Adrovic, A., Feldman, B., Terreri, M. T., Sakamoto, A. P., Torok, K. S., Johnson, S., Anton, J., Baykal, G. Ö., Sztajnbok, F., Stanevicha, V., Katsikas, M., Khubchandani, R., Appenzeller, S., Avcin, T., Kostik, M., Marrani, E., ... Helmus, N. (2025). Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort. Pediatric Rheumatology, 23(Suppl.2), 125-126. Article P166.

@article{e1560d4b4c364d7e8f1cf0ce363e965e,

title = "Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort",

author = "Ivan Foeldvari and Jens Klotsche and Ozgur Kasapcopur and Amra Adrovic and Brian Feldman and Terreri, \{Maria Teresa\} and Sakamoto, \{Ana Paula\} and Torok, \{Kathryn S.\} and Sindhu Johnson and Jordi Anton and Baykal, \{G{\"u}lcan {\"O}zomay\} and Flavio Sztajnbok and Valda Stanevicha and Maria Katsikas and Raju Khubchandani and Simone Appenzeller and Tadej Avcin and Mikhail Kostik and Edoardo Marrani and Walter‐Alberto Sifuentes‐Giraldo and Dieneke Schonenberg‐Meinema and D. Nemcova and \{Abu Al Saoud\}, S. and E. Al-Abadi and Christina Battagliotti and Lillemor Berntson and Bianca Bica and J{\"u}rgen Brunner and Patricia Costa-Reis and Despina Eleftheriou and Gerd Horneff and Mahesh Janarthanan and Tilmann Kallinich and Thomas Lehman and Kirsten Minden and Monika Moll and Susan Nielsen and Clare Pain and Anjali Patwardhan and Santos, \{Maria Jose\} and Vanessa Smith and Yosef Uziel and Nicola Helmus",

year = "2025",

language = "English",

volume = "23",

pages = "125--126",

journal = "Pediatric Rheumatology",

issn = "1546-0096",

publisher = "BioMed Central Ltd.",

number = "Suppl.2",

note = "32nd European Paediatric Rheumatology Congress ; Conference date: 17-09-2025 Through 20-10-2025",

}

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Feldman, B, Terreri, MT, Sakamoto, AP, Torok, KS, Johnson, S, Anton, J, Baykal, GÖ, Sztajnbok, F, Stanevicha, V, Katsikas, M, Khubchandani, R, Appenzeller, S, Avcin, T, Kostik, M, Marrani, E, Sifuentes‐Giraldo, WA, Schonenberg‐Meinema, D, Nemcova, D, Abu Al Saoud, S, Al-Abadi, E, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa-Reis, P, Eleftheriou, D, Horneff, G, Janarthanan, M, Kallinich, T, Lehman, T, Minden, K, Moll, M, Nielsen, S, Pain, C, Patwardhan, A, Santos, MJ, Smith, V, Uziel, Y & Helmus, N 2025, 'Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort', Pediatric Rheumatology, vol. 23, no. Suppl.2, P166, pp. 125-126.

Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort. / Foeldvari, Ivan; Klotsche, Jens; Kasapcopur, Ozgur et al.
In: Pediatric Rheumatology, Vol. 23, No. Suppl.2, P166, 2025, p. 125-126.

Research output: Contribution to journal › Meeting Abstract › peer-review

TY - JOUR

T1 - Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort

AU - Foeldvari, Ivan

AU - Klotsche, Jens

AU - Kasapcopur, Ozgur

AU - Adrovic, Amra

AU - Feldman, Brian

AU - Terreri, Maria Teresa

AU - Sakamoto, Ana Paula

AU - Torok, Kathryn S.

AU - Johnson, Sindhu

AU - Anton, Jordi

AU - Baykal, Gülcan Özomay

AU - Sztajnbok, Flavio

AU - Stanevicha, Valda

AU - Katsikas, Maria

AU - Khubchandani, Raju

AU - Appenzeller, Simone

AU - Avcin, Tadej

AU - Kostik, Mikhail

AU - Marrani, Edoardo

AU - Sifuentes‐Giraldo, Walter‐Alberto

AU - Schonenberg‐Meinema, Dieneke

AU - Nemcova, D.

AU - Abu Al Saoud, S.

AU - Al-Abadi, E.

AU - Battagliotti, Christina

AU - Berntson, Lillemor

AU - Bica, Bianca

AU - Brunner, Jürgen

AU - Costa-Reis, Patricia

AU - Eleftheriou, Despina

AU - Horneff, Gerd

AU - Janarthanan, Mahesh

AU - Kallinich, Tilmann

AU - Lehman, Thomas

AU - Minden, Kirsten

AU - Moll, Monika

AU - Nielsen, Susan

AU - Pain, Clare

AU - Patwardhan, Anjali

AU - Santos, Maria Jose

AU - Smith, Vanessa

AU - Uziel, Yosef

AU - Helmus, Nicola

PY - 2025

Y1 - 2025

M3 - Meeting Abstract

SN - 1546-0096

VL - 23

SP - 125

EP - 126

JO - Pediatric Rheumatology

JF - Pediatric Rheumatology

IS - Suppl.2

M1 - P166

T2 - 32nd European Paediatric Rheumatology Congress

Y2 - 17 September 2025 through 20 October 2025

ER -