TY - JOUR
T1 - Real-Time Dissemination of Aggregate Data on Presentation and Outcomes of Patients With Venous Thromboembolism
T2 - The RIETE Infographics Project
AU - Tafur, Alfonso
AU - Bikdeli, Behnood
AU - Weinberg, Ido
AU - Jimenez, David
AU - Monreal, Annia
AU - Barba, Raquel
AU - Mira, Enrique
AU - Macrinici, Victor
AU - Krumholz, Harlan M.
AU - Hawkins, Mayra
AU - Monreal, Manuel
AU - RIETE Investigators
A2 - Adarraga, M. D.
A2 - Agud, M.
A2 - Aibar, J.
A2 - Aibar, M. A.
A2 - Alfonso, J.
A2 - Amado, C.
A2 - Arcelus, J. I.
A2 - Baeza, C.
A2 - Ballaz, A.
A2 - Barba, R.
A2 - Barbagelata, C.
A2 - Barrón, M.
A2 - Barrón-Andrés, B.
A2 - Blanco-Molina, A.
A2 - Camon, A. M.
A2 - Cañas, I.
A2 - Castro, J.
A2 - Cerdà, P.
A2 - Criado, J.
A2 - de Ancos, C.
A2 - de Miguel, J.
A2 - del Toro, J.
A2 - Demelo-Rodríguez, P.
A2 - Díaz-Peromingo, J. A.
A2 - Díez-Sierra, J.
A2 - Díaz-Simón, R.
A2 - Domínguez, I. M.
A2 - Encabo, M.
A2 - Escribano, J. C.
A2 - Falgá, C.
A2 - Farfán, A. I.
A2 - Fernández-Capitán, C.
A2 - Fernández-Reyes, J. L.
A2 - Fidalgo, M. A.
A2 - Flores, K.
A2 - Font, C.
A2 - Font, L.
A2 - Ģībietis, Valdis
A2 - Kigitovica, D.
A2 - Skride, A.
N1 - Full list of RIETE Investigators is given in the Appendix of the article.
Funding Information:
The authors express their gratitude to Sanofi Spain for supporting this Registry with an unrestricted educational grant. The authors also thank the RIETE Registry Coordinating Center, S&H Medical Science Service, for their quality control data, logistic and administrative support. The author(s) received no financial support for the research, authorship, and/or publication of this article.
Publisher Copyright:
© The Author(s) 2020.
PY - 2020
Y1 - 2020
N2 - In the current era of patient empowerment and precision medicine, access to timely information is critical to decision-making. Unfortunately, we currently lack patient-specific, real-time data about clinical presentation, risk of thrombotic or hemorrhagic events, key risk factors, and adverse outcomes in patients with venous thromboembolism (VTE). Accordingly, the Registro Informatizado Enfermedad TromboEmbólica (RIETE) investigators developed a tool to provide an open-source, real-time graphic representation of VTE-related data derived from over 90 000 patients with confirmed VTE. This information is intended to facilitate discussion in the informed decision-making process. The current article describes the aims, rationale, methods, and ongoing and future efforts of the real-time VTE infographics developed by the RIETE registry collaborators.
AB - In the current era of patient empowerment and precision medicine, access to timely information is critical to decision-making. Unfortunately, we currently lack patient-specific, real-time data about clinical presentation, risk of thrombotic or hemorrhagic events, key risk factors, and adverse outcomes in patients with venous thromboembolism (VTE). Accordingly, the Registro Informatizado Enfermedad TromboEmbólica (RIETE) investigators developed a tool to provide an open-source, real-time graphic representation of VTE-related data derived from over 90 000 patients with confirmed VTE. This information is intended to facilitate discussion in the informed decision-making process. The current article describes the aims, rationale, methods, and ongoing and future efforts of the real-time VTE infographics developed by the RIETE registry collaborators.
KW - pulmonary embolism
KW - risk assessment
KW - thrombosis
UR - http://www.scopus.com/inward/record.url?scp=85091128445&partnerID=8YFLogxK
U2 - 10.1177/1076029620931200
DO - 10.1177/1076029620931200
M3 - Article
C2 - 32936691
AN - SCOPUS:85091128445
SN - 1076-0296
VL - 26
JO - Clinical and Applied Thrombosis/Hemostasis
JF - Clinical and Applied Thrombosis/Hemostasis
ER -