TY - JOUR
T1 - Stakeholder Consensus on an Interdisciplinary Terminology to Enable the Development and Uptake of Medication Adherence Technologies Across Health Systems
T2 - Web-Based Real-Time Delphi Study
AU - Dima, Alexandra Lelia
AU - Makovec, Urska Nabergoj
AU - Ribaut, Janette
AU - Haupenthal, Frederik
AU - Barnestein-Fonseca, Pilar
AU - Goetzinger, Catherine
AU - Grant, Sean
AU - Jácome, Cristina
AU - Šmits, Dins
AU - Tadic, Ivana
AU - Van Boven, Job
AU - Tsiligianni, Ioanna
AU - Herdeiro, Maria Teresa
AU - Roque, Fátima
AU - European Network to Advance Best Practices and Technology on Medication Adherence (ENABLE)
AU - Panayotov, Pavel
AU - Pirri, Salvatore
AU - Paulino, Ema
AU - Bužančić, Iva
AU - Kamberi, Fatjona
AU - Lewek, Pawel
AU - Šola, Katarina Fehir
AU - Allemann, Samuel
AU - Schneider, Marie P.
AU - Kkolou, Elena
AU - Aarnio, Emma
AU - Menditto, Enrica
AU - Geers, Harm
AU - Gillespie, Ulrika
AU - Labsvirs, Edgars
AU - Mala-Ladova, Katerina
AU - Agh, Tamas
AU - Moreno-Conde, Alberto
AU - Plexousakis, Dimitris
AU - Mevsim, Vildan
AU - Bigna, Fischer
AU - Ryan, Dermot
AU - Wengström, Yvonne
AU - Spanic, Tanja
AU - Schweitzer, Ana Maria
AU - Kamusheva, Maria
AU - Dahlén, Elin
AU - Odalović, Marina
AU - Andelković, Jasna
AU - Celano, Antonella
AU - Dolgin, Kevin
AU - Viktil, Kirsten K.
AU - Del Pino-Sedeño, Tasmania
AU - Margarida Pisco Almeida, Ana
AU - Mezei, Fruzsina
AU - Vrijens, Bernard
N1 - Publisher Copyright:
© Alexandra Lelia Dima, Urska Nabergoj Makovec, Janette Ribaut, Frederik Haupenthal, Pilar Barnestein-Fonseca, Catherine Goetzinger, Sean Grant, Cristina Jácome, Dins Smits, Ivana Tadic, Job van Boven, Ioanna Tsiligianni, Maria Teresa Herdeiro, Fátima Roque, European Network to Advance Best Practices and Technology on Medication Adherence (ENABLE).
PY - 2025/3/25
Y1 - 2025/3/25
N2 - Background: Technology-mediated medication adherence interventions have proven useful, yet implementation in clinical practice is low. The European Network to Advance Best Practices and Technology on Medication Adherence (ENABLE) European Cooperation in Science and Technology Action (CA19132) online repository of medication adherence technologies (MATechs) aims to provide an open access, searchable knowledge management platform to facilitate innovation and support medication adherence management across health systems. To provide a solid foundation for optimal use and collaboration, the repository requires a shared interdisciplinary terminology. Objective: We consulted stakeholders on their views and level of agreement with the terminology proposed to inform the ENABLE repository structure. Methods: A real-time web-based Delphi study was conducted with stakeholders from 39 countries active in research, clinical practice, patient representation, policy making, and technology development. Participants rated terms and definitions of MATech and of 21 attribute clusters on product and provider information, medication adherence descriptors, and evaluation and implementation. Relevance, clarity, and completeness criteria were rated on 9-point scales, and free-text comments were provided interactively. Participants could reconsider their ratings based on real-time aggregated feedback and revisit the survey throughout the study period. We quantified agreement and process indicators for the complete sample and per stakeholder group and performed content analysis on comments. Consensus was considered reached for ratings with a disagreement index of
AB - Background: Technology-mediated medication adherence interventions have proven useful, yet implementation in clinical practice is low. The European Network to Advance Best Practices and Technology on Medication Adherence (ENABLE) European Cooperation in Science and Technology Action (CA19132) online repository of medication adherence technologies (MATechs) aims to provide an open access, searchable knowledge management platform to facilitate innovation and support medication adherence management across health systems. To provide a solid foundation for optimal use and collaboration, the repository requires a shared interdisciplinary terminology. Objective: We consulted stakeholders on their views and level of agreement with the terminology proposed to inform the ENABLE repository structure. Methods: A real-time web-based Delphi study was conducted with stakeholders from 39 countries active in research, clinical practice, patient representation, policy making, and technology development. Participants rated terms and definitions of MATech and of 21 attribute clusters on product and provider information, medication adherence descriptors, and evaluation and implementation. Relevance, clarity, and completeness criteria were rated on 9-point scales, and free-text comments were provided interactively. Participants could reconsider their ratings based on real-time aggregated feedback and revisit the survey throughout the study period. We quantified agreement and process indicators for the complete sample and per stakeholder group and performed content analysis on comments. Consensus was considered reached for ratings with a disagreement index of
KW - behavioral science
KW - Delphi study
KW - digital health
KW - health technology
KW - implementation science
KW - medication adherence
KW - stakeholder engagement
UR - http://www.scopus.com/inward/record.url?scp=105001279963&partnerID=8YFLogxK
U2 - 10.2196/59738
DO - 10.2196/59738
M3 - Article
C2 - 40132192
AN - SCOPUS:105001279963
SN - 1439-4456
VL - 27
JO - Journal of Medical Internet Research
JF - Journal of Medical Internet Research
M1 - e59738
ER -