The European registry for rare bone and mineral conditions (EuRR-Bone): results of a survey on osteogenesis imperfecta and fibrous dysplasia McCune-Albright syndrome

Ana Luisa Priego Zurita; Oana O. Danila; Jeremy Allgrove; Maria Luisa Brandi; Jillian Bryce; Roland Chapurlat; Iveta Dzivite-Krisane; Corinna Grasemann; Wolfgang Högler; M. Kassim Javaid; Helen McDevitt; Rodrigo Montero-Lopez; Geert Mortier; Ralf Oheim; Jose A. Riancho; Luisa de Sanctis; Annemarie A. Verrijn Stuart; Daniele Tessaris; S. Faisal Ahmed; Natasha Appelman-Dijkstra

doi:10.1016/j.bonr.2022.101297

The European registry for rare bone and mineral conditions (EuRR-Bone): results of a survey on osteogenesis imperfecta and fibrous dysplasia McCune-Albright syndrome

Ana Luisa Priego Zurita
, Oana O. Danila
, Jeremy Allgrove
, Maria Luisa Brandi
, Jillian Bryce
, Roland Chapurlat
, Iveta Dzivite-Krisane
, Corinna Grasemann
, Wolfgang Högler
, M. Kassim Javaid
, Helen McDevitt
, Rodrigo Montero-Lopez
, Geert Mortier
, Ralf Oheim
, Jose A. Riancho
, Luisa de Sanctis
, Annemarie A. Verrijn Stuart
, Daniele Tessaris
, S. Faisal Ahmed
, Natasha Appelman-Dijkstra

Research output: Contribution to journal › Meeting Abstract › peer-review

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Original language	English
Article number	P269
Journal	Bone Reports
Volume	16
Issue number	Suppl.
DOIs	https://doi.org/10.1016/j.bonr.2022.101297
Publication status	Published - 1 May 2022
Externally published	Yes
Event	ECTS 2022 Congress 49th European Calcified Tissue Society Congress - Helsinki, Finland Duration: 7 May 2022 → 10 May 2022 Conference number: 49 https://boneresearchsociety.org/meetings/185/

Field of Science*

3.2 Clinical medicine

Publication Type*

3.4. Other publications in conference proceedings (including local)

Access to Document

10.1016/j.bonr.2022.101297Licence: CC BY-NC-ND

European registryFinal published version, 1.25 MBLicence: CC BY-NC-ND

Cite this

Zurita, A. L. P., Danila, O. O., Allgrove, J., Brandi, M. L., Bryce, J., Chapurlat, R., Dzivite-Krisane, I., Grasemann, C., Högler, W., Javaid, M. K., McDevitt, H., Montero-Lopez, R., Mortier, G., Oheim, R., Riancho, J. A., de Sanctis, L., Verrijn Stuart, A. A., Tessaris, D., Ahmed, S. F., & Appelman-Dijkstra, N. (2022). The European registry for rare bone and mineral conditions (EuRR-Bone): results of a survey on osteogenesis imperfecta and fibrous dysplasia McCune-Albright syndrome. Bone Reports, 16(Suppl.), Article P269. https://doi.org/10.1016/j.bonr.2022.101297

@article{e5ddef82681644c3b7f3c214fbff6fff,

title = "The European registry for rare bone and mineral conditions (EuRR-Bone): results of a survey on osteogenesis imperfecta and fibrous dysplasia McCune-Albright syndrome",

author = "Zurita, \{Ana Luisa Priego\} and Danila, \{Oana O.\} and Jeremy Allgrove and Brandi, \{Maria Luisa\} and Jillian Bryce and Roland Chapurlat and Iveta Dzivite-Krisane and Corinna Grasemann and Wolfgang H{\"o}gler and Javaid, \{M. Kassim\} and Helen McDevitt and Rodrigo Montero-Lopez and Geert Mortier and Ralf Oheim and Riancho, \{Jose A.\} and \{de Sanctis\}, Luisa and \{Verrijn Stuart\}, \{Annemarie A.\} and Daniele Tessaris and Ahmed, \{S. Faisal\} and Natasha Appelman-Dijkstra",

year = "2022",

month = may,

day = "1",

doi = "10.1016/j.bonr.2022.101297",

language = "English",

volume = "16",

journal = "Bone Reports",

issn = "2352-1872",

publisher = "Elsevier Inc.",

number = "Suppl.",

note = "ECTS 2022 Congress<br/>49th European Calcified Tissue Society Congress ; Conference date: 07-05-2022 Through 10-05-2022",

url = "https://boneresearchsociety.org/meetings/185/",

}

Zurita, ALP, Danila, OO, Allgrove, J, Brandi, ML, Bryce, J, Chapurlat, R, Dzivite-Krisane, I, Grasemann, C, Högler, W, Javaid, MK, McDevitt, H, Montero-Lopez, R, Mortier, G, Oheim, R, Riancho, JA, de Sanctis, L, Verrijn Stuart, AA, Tessaris, D, Ahmed, SF & Appelman-Dijkstra, N 2022, 'The European registry for rare bone and mineral conditions (EuRR-Bone): results of a survey on osteogenesis imperfecta and fibrous dysplasia McCune-Albright syndrome', Bone Reports, vol. 16, no. Suppl., P269. https://doi.org/10.1016/j.bonr.2022.101297

TY - JOUR

T1 - The European registry for rare bone and mineral conditions (EuRR-Bone)

T2 - ECTS 2022 Congress<br/>49th European Calcified Tissue Society Congress

AU - Zurita, Ana Luisa Priego

AU - Danila, Oana O.

AU - Allgrove, Jeremy

AU - Brandi, Maria Luisa

AU - Bryce, Jillian

AU - Chapurlat, Roland

AU - Dzivite-Krisane, Iveta

AU - Grasemann, Corinna

AU - Högler, Wolfgang

AU - Javaid, M. Kassim

AU - McDevitt, Helen

AU - Montero-Lopez, Rodrigo

AU - Mortier, Geert

AU - Oheim, Ralf

AU - Riancho, Jose A.

AU - de Sanctis, Luisa

AU - Verrijn Stuart, Annemarie A.

AU - Tessaris, Daniele

AU - Ahmed, S. Faisal

AU - Appelman-Dijkstra, Natasha

N1 - Conference code: 49

PY - 2022/5/1

Y1 - 2022/5/1

U2 - 10.1016/j.bonr.2022.101297

DO - 10.1016/j.bonr.2022.101297

M3 - Meeting Abstract

SN - 2352-1872

VL - 16

JO - Bone Reports

JF - Bone Reports

IS - Suppl.

M1 - P269

Y2 - 7 May 2022 through 10 May 2022

ER -